Wednesday, April 6, 2011

Michael had a successful follow up trip yesterday with Dr. Kleinman, his cardiologist. Michael's inflammation markers have reduced significantly. While they are not back to zero they are within normal range, which is exciting news. Because there has never been a child who has had both Hypoplastic Left Heart Syndrome and Kawasaki's disease, the entire cardiac team will be discussing Michael's case during next week's grand rounds. They will work to determine the best approach and whether to perform a catheterization, and if they plan for Michael's next surgery in July, September, or if they hold off for a whole year.

Dr. Kleinman has been caring for Michael since before he was born. His diligence, expertise, genuine compassion and ability to care for his patients, and their families, with respect and fervor has been invaluable throughout this journey. He has been a champion for Michael, marveled at Meg and Tom, and always provided thoughtful insight and acuity. We are forever grateful for his dedication to providing the best, most knowledgeable care. But a picture says a thousand words:



Meg has started physical therapy for her pelvis fracture. With Michael's good news, she is now going to focus on her recovery! Molly is doing wonderfully. She dances around the apartment, plays with her animals, and is constantly wanting to "Go, go, go!" Both she and Michael are loving the "baby." They run up and give him kisses and always want to hold him. In return, Baby Tommy follows them around the room with his eyes, looking like he's ready to join in the fun. And although he's a little young, the sight of his mom brings a big smile to his face (or he's just coincidentally gassy).

Thanks for all of the love and support!




7 comments:

Jezebel said...

Such good news abounds - love to hear it!

Ellie said...

So happy to hear the good news. Love and prayers to all of you.
Ellie and Jeff

Nancy said...

Wonderful news!!!
Love to all - Nancy

maryann said...

Awesome to hear your news!! We are constantly praying for all your needs and thankful for your rich blessings! Have fun with family this weekend. Yes, our Red Sox won in Fenway!! sending our love and best in Jesus, MaryAnn and Wayne
Your KC Red Sox and Celtics connection

mirwin@moog.com said...

Such great news for Michael. We are so happy to hear he is doing well.
All of love
Nannie

maryann said...

Hey there Mick! Give Molly and Tommy a hug for us. Hi to the rest of you! Mick, Wayne says to give grandpa trouble for him. He loves to tease your grandpa Ed. We heard you all were going on a trip to Disney world. Wow, we bet you had a great time!! Have a blessed and fun Eastertide!! We love you, MaryAnn and Wayne

maryann said...

Just love seeing these awesome kids!! Continue to think of you all and keep you in our constant prayers for rich blessings and grace in Jesus Christ. We love you!! Your KC Red Sox connection. Mick, we have a Red Sox lamp that we turn on after a win, the light in on again tonight!! Happy Easter and always, MaryAnn and Wayne