A Walk to remember

When we first found out that our baby had HLHS the cardiologist painted the worst possible picture of what our life/ his life would be. As soon as we got home I was glued to the Internet. I stayed awake until 1 am every night trying to find out as much as I could. In my search I found many Blogs and website of children that had HLHS. These sites were a great comfort, all of the children looked amazing for having the most sever heart disease. It was looking at these children when I thought WE CAN DO THIS, He is going to make it!! As my research continued I became extremely concerned that there was little information or Blogs of children over the age of 5. I knew that all HLHS babies had a 75% chance of making it past the age of 5, that statistic is based on the three surgeries. For our First appointment with our cardiologist Dr. Klinemnm ( our favorite Doctor), I brought up my concern. I asked Why is it that most parents discontinue their blogs after the age of 4, do their children not make it? His response was "no, in fact their survival rate increases after the age of 5. The parents stop because they are busy being parents and their children are busy being kids. For nine months that stuck in my head,wondering if we would have that experience.

Well, I am happy to report that the reason I have not been able to blog is because I have been busy being a parent, loving every second!!!

I now have time to share with you our memorable days together

Thursday we had our very first walk together. I cried at least ten times. It was emotional to have Michael smell, see and hear things for the first time. He saw His first bird, horse and buggie, the zoo, play ground, trees, and other children playing. My son smelt his first flower, clean air, hot dog stand, and fresh cut grass. The sounds of jazz music, solo flute, birds singing and children laughing filled the park. All though the greatest was our walk through the canopy, it has always been my favorite part of the park. For me to be able to walk him through like all the other mom's was something special. The walk though central park was certainly one to remember.

I will write more of our day soon Have to run to my little one, it's feeding time got to fatten him up!

Love to al
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Our final destination was to Daddy's office, I had my doctor's apt. and needed a sitter Daddy daycare was a big hit. Tommy loved having his son at his office.